Sorry that we have been a little distant this week. We have had a lot going on both good and hard.
Monday we got the chance to go to Disneyland! Here is link to our family blog with our trips pictures HARRELLOLOGY
The day after Disneyland was hard. Having such a picture perfect day and then walking into the week with the reality that this season is not giggles, candy, and super fun rides.
That this journey is REALLY REALLY HARD. There have been many tears shed this week, many prayers prayed that God would take this cup, that He would heal our lil girl, that He would change His mind and that this wouldn't be the plan He had for our family. John and I have both just been very very sad the last couple days. The idea of this continuing for a possible 13 more weeks feels exhausting both emotionally and physically.
That we do not know when the Lord will take our sweet Ruby and that we have to choose to trust that His timing is perfect. That we have to take every day one minute at a time and find joy in the little things. This week has been hard....but we Trust
Do not fear for I am with you. Do not be dismayed for I am your God. I will strengthen you and help you; I will uphold you with me righteous rod. Isaiah 41:10
We are still talking to CMH (our hospital) but they hope to get us in for a meeting in the next couple of weeks. She wants to make sure the manager of Labor and Delivery, the head of the Palliative Care, Bereavement, NICU and Pediatricians are all in attendance so that we can get all the answers and plans laid out. I am truly blown away by the hard work and support we are getting form this very sweet social worker at the hospital. She has been such a blessing!
I am so sorry sweetie, I know the tears catch me off guard and I if I was there we would probably make each other cry. I know this is a hard journey, full of questions and pauses. I can't tell you anything you don't already know but our love and prayers are with you and Ruby.
ReplyDeleteHer life is making a difference in the lives of everyone involved. People ask me whenever I'm at church, how you and John are and what's happening. I continue to share how you love and trust your Heavenly Father for His best and that there hasn't been any new developments (until today). My prayer is that she's resting and growing and that she's saving her strength for a growth spurt. But if God chooses to take her soon, please let me know so I can come, if you want me there.
I have heard other stories in the last week that have been so heart wrenching and I am so grateful for your faith and strength. But strength can waiver, thankfully you will have family and friends to support you and John. Tears will continue but we know that they can be tears of joy if God chooses, either way, we know she has eternal life with Him. Love and hugs, Mom